Thursday, July 6, 2017

The days go by long and the years go by fast

This couldn't be more true about our last year...


A year ago today I casually took Reece to the pediatrician in Pittsburgh because he had a "rash," not knowing that we would end up in the ER at Children's Hospital of Pittsburgh to find out Reece had AML... and this was the first day of a year that we will never forget.


This is one of the hardest and happiest post that I've written. Crying, going through the pictures, looking back it amazes me of what our little guy has endured in a year. There are days that I think to myself, "that didn't happen, there's no way that all happened!" And then there are days, like today, that I can remember it all like it happened yesterday. I can remember being in the ER room, laying on the bed with Reece laying on top of me, asleep, and the doctor coming in and telling us that Reece had Leukemia... all I could do was close my eyes and mouth and start crying because I didn't want to make any noise because I didn't want to wake my sleeping baby.

And now, a year later, instead of being afraid of waking that sleeping baby I beg him to sleep because he is wired with energy... all. the. time! (praise God) 😀 What a difference a year makes. Every month we go in for blood work and only twice have we had a little scare because his numbers were a little off, but both times he ended up just having a little cold. Other than that, he's a perfectly happy and healthy two-and-half-year-old boy! In the past year, Reece:
- was diagnosed with AML
- had 5 surgeries
- had multiple transfusions
- rode on his first private plane (thanks again CAT!)
- went through 4 intense rounds of chemo (not to mention, lived in the hospital for 5 months)
- BEAT CANCER
- broke his arm
- went to school for the first time
- saw Elmo Live for the first time
- loves the beach
- got potty trained
- was in his first wedding
- bought our first house as a family
- caught his first fish

While thinking about this day last year is gut-wrenchingly hard, thinking about the year brings so much happiness to us.

And to be honest, I didn't want to write this post. I didn't want to re-think and re-live all of the terrible times, I didn't want to look back on the pictures and cry, I didn't want to think about the what-ifs about the future, but I had to write it for all of the people who supported us. This is a monumental day for not only us, but everyone who has sent Reece gifts, sent us messages constantly asking about him, said prayers, and just supported us. And for that, we will never be able to thank you enough. Because of you, we have an amazing, smart, beautiful, joyous, crazy, energetic, sweet, thriving, living boy. Again, thank you all for the support and we ask that you keep him in our prayers because while the past year is gone, the future is ahead and we don't want to ever go through what we went through again.

If we've learned anything it's to never take a single day for granted. God knows how much we can take and only gives us what we can handle (which in our case he must think very highly of us 😉) Like I said before, the days may go by slow, but the years go by fast, there's not enough time in our lives to worry about the small stuff. Matthew 6:26-27 says, "Look at the birds of the air: They do not sow or reap or gather into barns-and yet your Heavenly Father feeds them. Are you not much more valuable than they? Who of you by worrying can add a single hour to his lifespan?"

("Thank you for all the prayers")

Sunday, November 27, 2016

Reece rang the bell and WE'RE HOME!!!!

After 4 intense rounds of Chemo, 8 days in the ICU, 121 nights in the hospital... REECE HAS KICKED CANCER'S BUTT!!!!
Our Friday, November 25th, Reece rang the bell (meaning behind ringing the bell) and we ran out of the hospital as fast as we possibly could!
We are so overwhelmed with joy we can't even describe it!! 

He will continue to be monitored very closely for the next 5 years, especially the first 6 months. We are optimistic about never having a relapse, but we still ask for all your prayers.

As a celebration, we are planing on having a big party in the spring (once we know 100% that his counts are up and his immune system is back to normal). So, everyone be on the lookout for more information about that because we want it to be a HUGE celebration for Reece!

Again, we are so grateful for all the prayers, gifts, donations, thoughts, notes, literally everything that everyone has done for us! We couldn't have gone through this journey with y'all!!
"The Lord is my strength and my shield: my heart trusts in him, and he helps me. My heart leaps for joy, and with my song I praise him." Psalm 28:7

Tuesday, November 15, 2016

Keep the prayers going for our Reece

Please say a prayer for Reece! Our little champ is having a sick week. He's been fighting 3 bacteria infections since Saturday. Today his breathing increased rapidly and the docs decided to send him to the ICU for further care and evaluation. Currently Reece is hooked up to a breathing machine to help slow his breathing while further tests are ran. We are obviously super worried about him but know he is in good hands. As serious as this sounds, the doctors are confident Reece will be fine and will get through this as he has in the past.

Your prayers have worked so far...we just ask for a few more to get us through these final days of his last round of chemo.

We love ya'll and thank you so much for the support!

Tuesday, October 18, 2016

WE HAVE SHIRTS!

First thing, Reece is doing great! We are on day 22 in the hospital and (knock on wood) everything has been going as smooth as possible! No fevers, no infections, nada! His anc is still down to 0 but hopefully throughout the week it will go up and we can go home on the 23rd and then start the last round shortly after that!

To celebrate our little super hero, and raise money for the Ronald McDonald House we have created shirts for anyone who wants to support our little guy! We currently only have adult sizes, but please let me know if you are interested in kids sizes because if we have enough want I can do a second order.

They are $15.00 each and if you need it to be shipped it's just $4.00. ALL PROCEEDS ARE GOING DIRECTLY TO THE RONALD MCDONALD HOUSE OF HOUSTON HERE AT TCH.

There's a link at the bottom to pay via credit card or PayPal. If you do it this way it will also charge you shipping so we can ship the shirt to you.

If you would rather pick up your shirt just message me your size(s) and you can pick it up from us and just pay cash so you won't have to pay for shipping too!

Drum roll... here they are:






Please choose your size:

Monday, October 10, 2016

Run For A Reason

Hi guys! If you knew me before, then you know that I love running. Randomly, one day at the hospital I saw a poster in the family room advertising that the Ronald McDonald House has a team for the Houston Marathon. A light bulb went off in my head (finally :) and it hit me that going forward, every race that I do I want it to be for a cause, specially one that has impacted my life so much. SO, I decided to join the team!

You can go directly to my page here: http://www.chevronhoustonmarathon.com/Donate/PersonalPage.cfm?MID=16169

I decided to join the Ronald McDonald House team specifically because of everything they do for families like us in the hospital and I want to help keep them up and running. Families travel across the country to get the best doctors and treatments to give their child a chance a life. The Ronald McDonald House is truly a lifesaver for these families, providing comforting support and housing for little to no cost. Not only do they provide housing, many of their volunteers have come to Reece's room giving him toys and crafts to help entertain him and ease the pain of having to live in a hospital.

Please feel free to help me raise money for them! Again, here is the link to where you can donate: http://www.chevronhoustonmarathon.com/Donate/PersonalPage.cfm?MID=16169

Sunday, October 9, 2016

Give Blood, Save Lives

First thing, a little update on Reece - he's doing so great for everything that he's been through! This round he had 5 days of high dosage chemotherapy. What does that mean? Well, the past two times he's received 10 mg of one of the types of chemo, this time he received 30 mg!


This one drug in particular usually causes rashes, pink eye (so much that as a precaution we had to give Reece eyedrops during this round), fevers... so we knew going into this round that it might be a little tough. But guess what... Reece truly is a super hero! The only thing he got this time around was a rash all over his body - which SUCKS (see picture below) - but still if that's all that happens I'm A.O.K. with that! With that said, his counts are now really low, and we are still only on day 14 of our 28 day stay in the hospital, so please please please keep praying/sending good thoughts that he doesn't get a fever, infection, or disease in these crucial days.


As for the title of the post, Give Blood, Save Lives. I really wanted to encourage everyone to give blood. Before going through all of this, I knew that giving blood was a good thing, but I always thought that only trauma patients required blood. Since Reece got diagnosed in July he has had 4 platelet transfusions and 4 blood transfusions! And he is just one of the MANY cancer patients that require transfusions.

My sister and I went to give blood about a month ago and found out some useful information in case you're thinking of giving blood. We went in to just "donate blood" (AKA whole blood), but after talking to some of the people that work there I found out that you can only donate blood every 56 days. They were worried that, God forbid, if Reece needed something directly from Rodney or I, I wouldn't be able to donate it because I gave blood, so they gave me another option. I could donate platelets are red blood cells, because you can donate those every 7 days!

The whole process was so eye-opening and fascinating to me! We sat down just like you would do if you were giving blood... they put the IV in and blood starts coming out. BUT this time you are hooked up to a machine and literally as you are sitting there the machine takes your blood and separates the platelets, red blood cells, and white blood cells. They keep the platelets and red blood cells but then put the white blood cells back in you. I'm not going to lie, this does take longer than just giving whole blood, and it is slightly more painful - but hi, my son has gone through multiple transfusions, chemotherapy, surgeries... I think I can take a little pain from giving blood to him.


With all of this being said, no Reece can't take direct blood (long story short, blood has to go through different processes to check and make sure it's clean), BUT that shouldn't stop anyone from giving blood! There are SO many people who need blood everyday and the blood banks are always running on the low side.

Also, we are talking to the Gulf Coast Regional Blood Center about setting up a blood drive in honor of Reece - so be on the look out for when we will be doing that (Hopefully late November, early December). We will keep everyone updated!

As always, thank you so much for keeping Reece in your thoughts and prayers, it means more to us than we will ever be able to express!

Monday, September 26, 2016

Time Away

Well...long time no see (or read in this case). We were discharged from the hospital and ended the second round September 16th so we were able to be home for a full week and a half!!! It was great, amazing, peaceful, fun, relaxing, everything we hoped for. It was great seeing him run around the house like a "normal" toddler where you question how such a little body has so my energy.

While we were home, we came back to the hospital on the 21st to check his blood, see if he needed any transfusions, and to also do a bone marrow biopsy. First thing, his counts all looked amazing - ANC (white blood count) was over 1,000 and he didn't need any blood or platelet transfusions because his body is producing everything it needs on its own! His counts looked so good the doctors said he could have started the 3rd round of chemo that day but they weren't expecting his counts to be so high and they didn't have a room ready for him - which is A.O.K. With us because that means we got to spend more time at home!

Second great news, his biopsy still shows no signs of Leukemia! Praise the Lord!!!

Today we got admitted back into the hospital to start round 3...

Please pray for strength for Reece. This round of chemo is only 5 days of actual medicine bite its at a much higher dosage than he's had thus far. Also, please pray for the doctors and. Rises looking after him - that they have the knowledge they need and protection against infection and disease.

Our new room is at the Children's Hospital in Houston, West Tower, Room 922.

Thank you all for the continual prayers and good thoughts even during the quiet times.