Friday, July 29, 2016

Hair Today, Gone Tomorrow

This is what I have been dreading... the "cancer patient look". I'm not going to lie, I was really worried about how I would take it when his hair started falling out... and well... just like that it started happening...

...and happening...

until we finally just decided to give him the army look! (and I have to say he looks so darn cute!)

And don't worry, "long no hair, don't care" still applies when it comes to photos... our snapchat game is still strong!



And to be honest with you, his hair coming out hasn't effected me at all! I swear this child blows me away with how resilient and amazing he's taking this cancer thing. I say "this cancer thing" so non-shalontly because that's just how it seems to be for him. He's off all medicine right now (antibiotics, steroids, anti-nausea medicine), and in the past two days he's had a blood transfusion and platelet transfusion and nothing is bothering him!

He's even learned things that kids his age shouldn't know. When the nurses come in (every 4 hours... yes that means midnight, 4am, 8am... *sigh*), he says, "hi nuses" then he points to his arm and says "budpessue (blood pressure)" and points under his arm and says "tempatoo (temperature)". And then when they leave he says one of the following, "bye bye", "atioose (adios)", or "ada ada da bee bee (hasta la vista, baby)", which always brings a smile to the nurses faces.

Even though he has a smile on his face and running from wall to wall in our 300 square foot confinements, Rodney and I are still so worried about our little guy. We still have moments when one of us just breaks down and cries our face off. It can be so easy for us to look on the dark side of things especially when we read statistics or talk to families who have been deeply hurt by cancer. We are so lucky to have such good support with each other and all of our friends and family, but to anyone who has been through this, it can be really really tough on us too. I keep getting asked to write about how Rodney and I are taking things, and the truth is 80% of the time we are positive because we see that smiling face on our little guy, but that other 20% is still there. And we've been so scared and worried that we've cried together, we've laughed, we've prayed, we've yelled, we've hugged, we've sat in silence, we've had sleepless nights... we've had a tornado go through our lives and are slowly picking up the pieces.

One of the biggest pieces we've had to think about is being at an amazing hospital here in Pittsburgh or go back to Houston. After a LOT of thought and prayer we've decided the best thing to do emotionally, financially, mentally, and physically for Reece and our family is to pick up our stuff an GO BACK TO TEXAS (cling glasses, pop bottles, throw balloons, high five)!!!!

The "plan" is to be back in Houston at Texas Children's Hospital starting August 10th (Happy Birthday Rodney)!!!

Thanks again to everyone for their continued love, prayers, and support. We couldn't get through this journey without it!


No comments:

Post a Comment